'Everything's a danger to Albie now. Every day we live in fear of something which could quite literally kill him'
A Preston mum has been warned that her five-year-old son's genetic disorder means playing outside in the fresh air could be fatal.
Rebecca, a teaching assistant from Preston, says the warning means Albie can only go outside "a little" but the family have to avoid crowds, water, grass, wood chips, loose soil and building work. It means they have no choice but to carry masks in case someone begins mowing grass on Albie's rare trips out, if he is playing in the garden and they hear a lawnmower, he has to come inside.
"We do carry FFP3 masks every where with us in case anyone starts mowing, and if he's out in the garden and people start mowing we bring him inside and close the windows." Albie was then referred to Blackpool Victoria Hospital where he was put on antibiotics to fight the infection. After finishing the course, there was no improvement and Albie was extremely weak.
"But in April his breathing got so bad I had to take him again, and that's when, on the third time of asking, we found out what the root of the problem was. At that point though, we still felt everything would be fine. Following the transplant, Albie will have to isolate for a year in which time Rebecca will be his 24/7 primary care giver and therefore unable to work. The family are concerned about their financial situation as Rebecca hasn't been in work since April.
The riskiest environment for Albie is when there are large crowds of people and areas with stagnant water or freshly cut grass.
Belgique Dernières Nouvelles, Belgique Actualités
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