Brave boy, 3, has spent more time in hospital than at home following tragic diagnosis
The family of a brave little boy who is on end-of-life care after being diagnosed with leukaemia during the pandemic say he has spent more time in hospitals than at home.
Raphael spent seven months in hospital during which only one person could come to visit him at a time as he underwent gruelling chemotherapy. “Because of bone marrow complications, he had to spend nearly a year in hospital,” dad Vincent, who worked as a delivery driver, explained. “He had to spend nearly a year in hospital. He relapsed again in March and had CAR T-cell therapy. He also had a bone marrow sample taken and it came back very affected. The CAR T basically didn’t work.
Raphael relapsed once again and returned into palliative care for the second time. His family has now been told there is no treatment left available for him. Both parents decided to go off work in order to look after Raphael full time and spend as much time with him as they can.