Two MND sufferers tell the BBC how the debilitating neurological condition is hard to diagnose.
Motor neurone disease is a life-altering, debilitating and terminal condition that affects people's ability to move, talk and breathe.
But getting diagnosed can take time, with some people being seen by multiple specialists before it is confirmed.Tina Parker, from Farnborough, Hampshire, was diagnosed with a rare form of the disease in 2021. She told the BBC it took two years before it was confirmed."It went on for so long, I was falling, there was no-one to talk to. I knew something was wrong and I was having all sorts of tests - nerve testing, MRI scans, brain scans.
While he is no longer able to work as an anaesthetist, he said he can still go about his life as normal and play rugby with his sons and even trek in the desert. Sally Hughes, from the Motor Neurone Disease Association, said late diagnosis means "fundamentally people will not get access to the service and support they need to live their daily life and have quality of life".
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