'Lucie is probably one of the success stories. It's daunting when you find out your child has a heart condition'
A young girl born with Down's syndrome and a heart condition is defying all odds nine years after undergoing surgery.
"Something like hers is fixable when others maybe aren't, however I think it's one of the crowning glories of our NHS we can access that without any stress and the cardiac team in Belfast are incredible, I couldn't praise them enough, between them and the Children's Heartbeat Trust. "Sometimes it can fix itself, but hers was too severe so it would need surgery. It all turned into a bit of a whirlwind. That was in January, and we took her to London in June for surgery.
"They're very different which is nice, but it's very daunting. Jay is off now for eight weeks, and his cardiac need is a lot more complex than hers, he tires very easily. "We try and do what we can do within reason, if it's too much we know. Lucie's cardiac need is easier to negate, Jay's is a lot more difficult. He will continue to have surgery, he needs a new valve at some point. His is never ending, he needs the pacemaker replaced, he has had five surgeries already, he will continue to have cardiac need forever."
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