A mother with a rare eye disease says she started a support network to help other young patients.
'I'm still traumatised by the way I was diagnosed'Katie was told she was going blind and didn't realise she would likely keep her peripheral vision
The only symptom I had at the time was that I was struggling to drive at night and the car lights had a halo around them.Stargardt disease is a genetic condition caused by a tiny alteration in a single gene.In the early stages, people may experience difficulty reading or seeing in dim light. Other common symptoms include blurriness and distortion of vision.
But the worst thing has been not being able to recognise my children. At school pick up, when all of the kids are wearing the same colour jumper, I really struggle. I decided to start blogging about learning to live with sight loss and I started an Instagram page and a Facebook support group because I felt like that was the sort of support I needed when I was diagnosed.