'No one should be left fighting for breath.”
A quarter of people with a deadly lung disease in Northern Ireland are waiting five years or more for a diagnosis.
Sharon Stewart, from Dungiven, lost her father Jimmy in 2021 after he had been diagnosed with COPD three years prior. “Jimmy was on inhalers for 2 years before being hospitalised and was finally diagnosed with COPD in 2018. As a family, we felt Jimmy was not getting the proper level of care. When his breathing worsened, he was no longer able to go out or walk, he was always exhausted and tired.
“We are aware of all the constraints on our health service, but these gaps in care are making things worse. More support and information are urgently needed so families like us can take care of the ones we love, knowing everything is being done to help them." The survery also found that 82% of patients said they had not received the ‘five fundamentals’ of basic COPD care, recommended by the National Institute for Health and Care Excellence .
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