TWO devastated parents have shared photos of their little girl to warn others of an incurable condition. Little Dani-Rae Brown suddenly lost use of her legs due to a rare genetic illness. Now mum T…
They said Dani-Rae had started to experience reduced movement in her legs 'overnight'."Back in April, Tyler rang me at work after she noticed that Dani-Rae had reduced movement in her legs.Spinal muscular atrophy is a genetic condition that makes the muscles weaker and causes problems with movement, the NHS says.
The experts add that SMA does not affect a person's intelligence, nor does it cause learning disabilities. "She then went to a physiotherapist who spoke to us about their patients with SMA but it's so rare not many medical professionals know about it." There are treatments available to slow down the deterioration of muscles and give Dani-Rae a chance at independence, such as Zolgensma gene therapy.Charlie added: "She will never be able to walk again but we are going to try everything to give her the best chance possible of regaining as much movement back as she can.
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